Tuesday, November 19, 2013

Carter's Visit with the ENT specialist

Carter saw the Ear, Nose & Throat doctor yesterday.  This appointment was scheduled for him while he was still in the nicu.  And it is always tough trying to time feedings with an hour drive to Springfield.  So we get there and go to check in, only to be told that this is the day the doctor is in Lebanon seeing patients.  And we were the second people to arrive at the Springfield office instead of Lebanon.  Thank you "Beth", whoever you are for making us drive 100 miles with a crying baby when we didn't need to.  So after all that, we came back to Lebanon and saw him here.  He had some concerns because of the hemangioma on his head.  He said sometimes if they are prone to have those, they can get them in their throat and it will constrict their airway.  So he ran a scope down Carter's throat to have a look (this was less fun than driving with a crying baby).  He has what he calls a floppy airway.  This causes him to have a stridor, or make funny squeaking sounds when he eats, essentially trying to get all the muscles working correctly between his windpipe and throat.  It is expected he will outgrow this by about 7 months.  There were no signs of a hemangioma in the throat, which is great news.  He suggested prescribing beta blockers, given orally, to begin to reduce the hemangioma on his head.  He said earlier treatments involved steroids, but they had greater side effects.  I guess beta blockers are the newest treatment for this.  The down side - they slow the heart rate somewhat. We are going to discuss this with Carter's pediatrician and get his opinion.  I have also read they can lower blood sugar levels, so I feel like if we do this, he should be frequently checked for both blood pressure and glucose levels.  Hard decision to make.  The studies say the sooner you begin treatment for hemangiomas, the more successful their reduction is.  But he just got off his apnea monitor and not sure we want to do anything that might affect his health.  Praying God will show us what decision to make.

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